Dakota's new float for the lake and pool this summer came in and we gave it a try in the tub. He LOVED it! Honestly this is one of the cheepest "special needs" float that I found and was skeptical about it at first. The picture at the top is him in the tub. He is sitting so well and using his hands to splash his toys. Dakota's sitting is getting better with every med wean but I feel this extra support float did the trick. When he was laying down he was very relaxed too.
Dakota had is dentist visit today and did well. He didn't have any decay just staining, mostly due to his seizure meds. We head down to Boston childrens on Firday to see his orthopedic doctor. He will check his scoliosis and see how well the feet casting went. As far as seizures go he is doing ok. The most that he is having in a day is 10 and they are usually the smaller ones. His total count for May was 141, so far in June he has had 58. This week they have been better with the most in one day being 5. We are continuing with the phenobarbital wean and the next decrease is tomorrow. He will be on this new dose for about 2-3 weeks. After that if his seizures don't get any worse we will stop it completely. If his seizure become worse we will go back up on the phenobarbital. This is all a test to see which medicine is really working.
Make sure to check out our fundraising page! We have the "31" calendar raffle going on right now and you can purchase tickets via pay pal or send check/cash. We also have been busy getting the registrations and flyers finished up for our 1st Annual Golf For Dakota Tournament. If you enjoy golfing or know someone that does please pass the info on.