We also had his follow up for the sleep study. So we headed up to Portland to meet Dr. Murray. The study shows Dakota has mild obstructive sleep apnea, meaning at times typically when he's in a deep sleep he oxygen dips down or he stops breathing. He recovers very fast from these episodes but this could be why he doesn’t sleep so well. He goes in for a tonsillotomy which is when they shave down the tonsil to a thin layer. This type of surgery has a faster recovery compared to a tonsillectomy. We maybe looking at a couple days stay compared to a week or two. There's less discomfort as well. While the doctor is in there he's going to see if his adenoids have grown back, if so he will remove those as well. He suggested giving Dakota botox in his salivary glands to lessen the amount of drool. At this point we are willing to give it a try. We have tried medicine to decrease but is hasn't helped as much as we'd like. This surgery is scheduled for July 18th. Not a whole lot of change in seizure activity.
Please take a look at our fundraisers. If we don’t sell enough raffle tickets for the “31” calendar we will continue selling during July and draw winners in August.
We have our first GOLF FOR DAKOTA TOURNAMENT coming up in September. Please spread the word. Your involvement means so much to us. Please help us fund therapies, equipment, trips to Boston children’s and most importantly safe transportation.