Thursday night Dakota had to have a sleep study done. When he was sick and in the hospital about a month ago he kept desattng into the 80s. So his doctors wanted to see what his base line was and if he needs some oxygen when he is sleeping. Unfortunately the tech can't give us to much information so we have to wait for the doctor to get the offical results. The tech did say that he slept well. He did have periods when he was up for about 30 minutes but would fall back to sleep on his own. He did desat down into the 80s a couple times but quickly recovered on his own. He didn't feel that the doctor would suggest oxygen but he could be wrong. So now we wait for those results.
Today started his new decrease in the phenobarbital. We are hoping that his seizures don't get worse and we continue to see new things emerge. We also got his bike all put together. We haven't gotten a picture yet. He was to tired by the time we were done. So hopefully tomorrow we will put some pictures up.