Dakota has kept us busy this week. We saw a neurosurgeon on Monday for possible VNS surgery (vagus nerve stimulator). We have decided to schedule this surgery for sometime in August. This will give us a month to see if the change in his keto ratio helps and to hopefully try CBD oil. Tuesday he had his first day of summer school, PT, then his neuro follow up here in Maine. He is officially off depakote with no increase in seizure activity. We agreed to keep him on Dilantin as it seemed to really break the clusters he was having in the hospital. We also received a call from GI with the results from the video capsule endoscopy. They saw some small ulcers and inflammation which are signs of chrons disease. We have started him on a medicine to help with the healing process and will check blood protein and stool in 3 weeks. If the numbers are going in the right direction then he will go on a maintenance medicine to help with chrons. This is hopefully our answer to his retching episodes, weight loss, protein loss and anemia. Today(Wednesday) he had his follow up eye check. We have been noticing his left eye wandering more since we left the hospital and have been worried there might be damage from all the seizures. We got good news that nothing has really changed since his last apt. His alignment is still off but the doc wont do surgery until seizures are controlled, he's near sighted in both eyes more so in the left and a little bit of vision lost which could have been from the seizures. He's going to go down to Boston to have a test done that will give us an idea of what his vision is. After that long visit we went to his first music class (thanks to the Robbie foundation). He loved it! Although he had a dozen seizures while there he was none stop smiling.